Butterflies for Ellie

Hundreds come to say goodbye to Ellie – CharlotteObserver.com.

Can you imagine 1,000,000 balloons being released to honor a girl who was so strong and who touched so many lives?  Let’s show Ellie and the world how much she touched our lives.

Worldwide Balloon Release this Saturday, 1:00 PM EST.   Release a white or pink balloon to honor Ellie Potvin.

I know alot of readers have also lost children to this horrible diease called CANCER release a separate balloon in honor of your son or daughter.

view CaringBridge entry

Summary of Amy’s CaringBridge journal entry:

“Our Ellie is still fighting!  Praise God.
Hospice tells us our beloved Ellie has approx. 2 weeks before she is “Lifted Up” to the heavens.  Our little angel has declined rapidly over the past couple weeks.  It has been hell on earth for our family. We have watched our Ellie’s spirit is breaking, the flame inside her spirit is fading away.
The pain has caused an overwhelming fear in Ellie, as the cancer rapidly has taken over her body.  Today we are working close with hospice to allow Ellie comfort in this journey.  And we continue alternative treatments in hopes our miracle of healing is yet to come.

Faith, Hope and Belief to the end… we must believe. Believe.”

Ellie Artwork and Angel Paintings for purchase!
New print  “All Things Bright and Beautiful” in Ellie’s Art Collection.  Also, new beautiful angels prints.

The painting “Sisters” is of Ellie and Grace. Anne Neilson prayed for God to help her capture both Ellie and Grace’s spirit… and she did beautiful work.
These prints are limited in supply. Proceeds of Ellie’s work and Angel paintings will go directly to Ellie’s medical care fund.
http://www.anneneilsonfineart.com/ellie-potvin-prints/

http://www.anneneilsonfineart.com/angel-prints-for-ellie/

The goal is to raise a total of $3,000 which $900.00 would go to support Ellie.

The event starts today and ends on 6/4/2010.

You will need to follow the link to this Avon home page which is
https://darladesiderio.avonrepresentative.com/
You will need to create an account. It is easy- just fill in your e-mail address and create a password. Then click the On-Line Events tab and shop. Make sure that Ellie is entered into the code field so I can track the sales! Order everything you want and then click update coupon code.

For questions, contact ddesiderio45@gmail.com

I hope and pray we can lift up Ellie!

May 22 and 23 Lift Up Ellie benefit days at all BORDERS Bookstores around the country!

Please print and distribute the vouchers by any means possible, as it is good for use at any Borders store in the United States.

This is last minute – but together we can ask other to purchase Fathers Day, Graduation Gifts, Summer Reading Books and much more!

Please go to www.liftupellie.com   or  Lift Up Ellie on Facebook  to find a  promotional voucher for this weekend TO USE IN ANY BORDERS STORE!

If you live in Charlotte, NC please come join Borders Bookstore in Stonecrest Village on Rea Road today – Saturday May 22nd!

Ardrey Kell Womens lacrosse team with Kristin Driscoll will provide free gift-wrapping for Lift up Ellie 10:30 – 3:00 PM.

Nancy Drews’  80th Anniversary Party with the Carolina Sleuths Featuring Rudy Nappi, illustrator of Nancy Drew & Hardy Boys.  He will sign up to 5 copies of each series.

There will be several stations with crafts, spy fun, Raffles & more.

11:00 to 12:30 PM

Magic Barry will perform 3 thirty minute Comedy Magic Shows

2:00 to 3:30PM

Seattle’s Best Cafe will provide sampling during Nancy Drew & Magic Barry times.

Borders and Waldenbooks are being extremely generous this weekend, May 22-23, and are donating part of their sales to Lift Up Ellie. The only catch is that you have to bring a voucher with you and provide it to the cashier when you check out. If you would like a voucher for this incredible fundraiser, please email Kristin Driscoll at ksdriscoll@aol.com. She will send you a few copies of the vouchers to send to everyone you know. This fundraiser is taking place all over the country as long as you bring the voucher! Please support Ellie!

Here’s another way you can help LIFT UP ELLIE!

If you have frequent flyer miles that you would like to donate to the family to assist with medical travel, here are their account numbers for both American Airlines and US Airways.

Amy Potvin

American Airlines Advantage account #221ykj0

US Airways account #50018848205

Join us to kick-off a week of giving for Team Potvin!
Friday, April 16th
6:00 pm – 8:00 pm
Hosted by Salon 42
Location:
2444 Park Road, Charlotte, NC 28203
in the Park Square Shopping Center in Dilworth

Join us tomorrow night (Friday) from 6pm-8pm for this FREE family fun kick-off event at Salon 42 in Dilworth. Ellie and Grace plan to be there with friends.

The event on Friday night will kick-off a week long of giving to the Potvin Family.  Starting Saturday 4/17 through Friday 4/23 a % of any hair cut, treatment, style or other salon services will be given to the “Lift Up Ellie Fund”.

You can make your appointment during the kick-off event or contact Tina at the Salon at 704.375.6234 or email Tina Hicks at salon42@live.com.

Check out the article on the WCNC website: http://www.wcnc.com/news/neighborhood-news/Salon-42-hosts-fundraiser-for-Ellie-89914327.html
Check out Salon 42 on Facebook http://www.facebook.com/group.php?v=wall&gid=136359090651
Here’s what’s going on…For the kids…
· FREE colored hair spray streak!
· Visits from Princesses and Chubby from the Charlotte Checkers
· Games & Activities
· Pink Lemonade & Popcorn
· Colored hair extensions, Belle Tunno Headbands and Ice Cream all available for purchase with % benefiting “Lift Up Ellie”
For the adults…
·  Waxing services & Hair consultation by Salon 42 Professionals
·  Wine tasting at The Wine Shop with % to“Lift Up Ellie”
·  Bella Tunno headbands and scarves available for purchase
For Everyone…
·   Light Snacks
·   Music, Raffles, Fun & More!
Donations will be made to Team Potvin for all hair services performed 4/17-4/23.

Help us support the Potvins and fight childhood cancer! 100% of the proceeds from The Lift Up Ellie Headband will go directly to the Lift Up Ellie Fund.

Shipping for online purchases will be free when the discount code ELLIE is entered at checkout.

8 year old girls should focus on Barbies and their multiplication tables. Their laughs should be light, airy, real – they shouldn’t have a care in the world. They should go to sleep replaying their soccer games and with tunes of Hannah Montana in their head.

Life’s just not that fancy-free for Ellie and Grace Potvin. Ellie is battling Stage 4 Rhabdomyosarcoma – a very rare childhood cancer. Ellie was diagnosed July 2, 2008 and life has been forever changed. Only 3% of children in the United States have this type of rare pediatric cancer. Out of the 350 children total diagnosed per year, only 175 children have a survival rate past 5 years.

She has been fighting this fight with her twin sister Grace and her parents for 1.5 years now. Ellie’s battles scars are visible from the sickness, Grace’s scars are equally as deep, but not for the world to see. These girls are warriors – fighting a battle with odds against them, the beast is so much bigger than the monster under their bed. Like most twins, Ellie and Grace have an inseparable bond – a love for each other that’s hard to describe to others. Ellie is holding on to life. Grace is holding on to hope. We want to band together to help them hold onto one another.

Bella Tunno has partnered with Ellie and Grace to create a reversible headband that reflects their personal style – Ellie’s side is hot pink camo – wild and experimental. Grace’s side is bright repeating stripes – pretty and conservative. But this isn’t just a headband – it’s a reflection of the girls – it’s their headband and it’s our chance to band together to show Ellie, Grace and her family our monetary, emotional and visible support. By purchasing this headband, others can join Ellie, and her family in their battle against cancer. Here’s how purchasing a headband helps:

• 100% of the proceeds are donated to the Ellie Potvin Fund to help with Ellie’s treatments and the family’s financial needs
• Purchasing a headband grows awareness for Ellie and Rhabdomyosarcoma.
• Wearing the Lift Up Ellie Headband is a visible show of support.

History

Ellie was diagnosed July 2, 2008 with a rare childhood cancer called Stage 4 Rhabdomyosarcoma. Only 3% of children in the United States have this type of rare pediatric cancer. Out of the 350 children total diagnosed per year, only 175 children have a survival rate past 5 years.

Mission

The mission of the “Lift Up Ellie Fund” is to find the cure for Ellie and ease the effects of this devastating illness on the family’s day to day life. This fund is a Supplemental Needs Trust Fund created for Ellie Shoal Potvin to offer various forms of financial relief for the family over the long years ahead.

Program

With each purchase, monetary, emotional and visible support is offered to Ellie, her family and the “Lift Up Ellie Fund.”

PIGTAILS & CREWCUTS and DOOLITTLES HAIR SALON will host Lift Up Ellie events this month!

Help us spread the word!

March 20th – Doolittle’s Hair Salon Stonecrest
10% of the proceeds from all haircuts will be donated to the Lift Up Ellie Fund
100% of proceeds from Lift Up Ellie & Grace headbands will go to the Lift Up Ellie Fund
Appointments preferred
http://doolittlecharlotte.com
7930-C Rea Road
Charlotte, NC 28277
(704) 341-3884
Hours: 9:00-2:30

March 27th – Pigtails & Crewcuts in BOTH Blakeney and Cotswald
10% of proceeds from both locations (and other local vendor sales) will be donated to the Lift Up Ellie Fund
There will be balloon animals, snacks, coupons, raffles, etc.
100% of proceeds from Lift Up Ellie & Grace headbands will go to the Lift Up Ellie Fund
50% of the proceeds from all other Bella Tunno Headbands will go to the Lift Up Ellie Fund
Walk-ins welcome/preferred

Cotswold Pigtails & Crewcuts
https://www.pigtailsandcrewcuts.com/viewLocation.aspx?lid=27
Cotswold Village Shops
210 S. Sharon Amity
Charlotte, NC 28211
Phone: 704.366.9100
Hours: 9:30-5:00

Blakeney Pigtails & Crewcuts
https://www.pigtailsandcrewcuts.com/viewLocation.aspx?lid=54
9935 Rea Road, Suite C
Charlotte, NC 28277
Phone: 704.541.3386
Hours: 9:00-4:00

Please support Team Potvin and Ellie at the Charlotte Checkers Hockey game on March 28th at 2:00 PM!